Does the Program replace existing programs and treatments?
The Positive Self-Management Program will not conflict with existing programs or treatment. It is designed to enhance regular treatment and HIV-specific education. The program gives them the skills to coordinate all the things needed to manage their health, as well as to help them keep active in their lives.
How was the Program developed?
While at Stanford University, Dr. Allen Gifford received a grant from the Robert Wood Johnson Foundation to develop and pilot a community-based self-management program to assist people with HIV. The study was completed in 1997.
The original research project had several investigators, including Allen Gifford, M.D., currently Professor of Health Policy & Management at Boston University School of Public Health. and co-director of the Veterans Administration HIV/Hepatitis QUERO Program in Bedford MA.; Kate Lorig, Dr.P.H., Stanford Professor Emeritus of Medicine; and Margaret Chesney, Ph.D., of the University of California, San Francisco . The Program was written by Dr. Gifford, Dr. Lorig, Virginia González, M.P.H., and Diana Laurent, M.P.H.. Dr. Lorig, Ms. González, and Ms. Laurent were all from the Stanford Patient Education Research Center.
How was the Program evaluated?
Over 200 people with HIV have now participated in an randomized, controlled test of the Program, and were followed for six months each.
What were the results?
Patients randomized to the PSMP were found to have improvements in their symptoms in the original developmental study. More recently, we have found that HIV patients in PSMP who are using antiretroviral medications have significantly better medication adherence and have better HIV suppression in the blood after 6 months. In spite of this, they have no more side effects than non-PSMP participants.**
How can my facility offer the Program?
Trainings for representatives of health care organizations are 4½ days. We offer a 1-day cross-training in Palo Alto for those who have already been trained to offer the Chronic Disease Self-Management Program. See our Training Page for more information.
*Living a Healthy Life with HIV (4th edition) Allison R. Webel PhD, RN, Kate Lorig, DrPH, Diana Laurent, MPH, Virginia González, MPH, Allen L. Gifford, MD, David Sobel, MD, MPH, Marian Minor, PT, PhD, MSPH. 2015 (Can be ordered from Bull Publishing)
**Results reported in:
"Pilot randomized trial of education to improve self-management skills of men with symptomatic HIV/AIDS" by Gifford AL, Laurent DD, González VM, Chesney MA, & Lorig KR. Journal of Acquired Immune Deficiency Syndrome and Human Retrovirology, 18(2):136-144, 1998.
"Effects of Group HIV Patient Education on Adherence to Antiretrovirals: A Randomized Controlled Trial" by Gifford AL, Bormann JE, Shively MJ, Lee M, Capparelli EV, Richman DD & Bozzette SA. Paper presented at the 8th Conference on Retroviruses and Opportunistic Infections, Chicago IL, 2001.